Year: 2015

The latest Updated Scientific Publications about CMT2A

Here to you a list of interesting and updated studies, for people suffering from CMT2A, carried out in some of the most famous Centers of Research in the world. We have collected them through PubMed  (US National Library of Medicine) the most important database of biomedical literature. Early onset Charcot-Marie-Tooth neuropathy type 2A and severe developmental delay:

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Papaya, the sweet fruit who fights illnesses

In these warm days, we would like to suggest you eating something as good as healthy which comes from beautiful Tropical lands: papaya. It is not only a delicious fruit to taste, but it is very healthy too, because it has got strong and beneficial properties. Some researchers believe papaya is

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The beneficial properties of the delicious Curried Chicken

“Shredded chicken in a creamed curry is our favourite recipe and we often eat it. All the recipes we share are selected not only for their nutritional properties, but also because they are delicious. We cook all of them in our kitchen” Luisa Perrero, co-founder of Mitofusin 2 Project, says.Many nutritional

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Not only celiacs fear glutin

Glutin is a binary protein naturally contained within many cereals like barley, rye and spelt. That’s what enables flour (once mixed with water and after a proper treatment) to become bread, because of its flexible properties which act like binding force. So far there are no problems.Problems arise when glutin

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Announcement for our CMT2A patients

Project Mitofusin 2 is dedicated to people with Charcot-Marie-Tooth type 2A caused by the mutation of Mitofusin 2 protein, both in its standard and in its clinical variants, which are: HMSN V/CMT V + spasticity in lower limbs (variant including myelopathy)Autosomal dominant transmission with onset starting from the second decade.

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CMT Medication Alert List

WE ARE PLEASED TO PUBLISH THIS USEFUL “WALLET SIZE ”  LIST OF MEDICATIONS POTENTIALLY TOXIC to PERSONS  WITH CMT . CMT Medication Alert List (wallet size) IT HAS BEEN COMPILED BY CMTA ASSOCIATION IN USA. VERY USEFUL, THANK YOU ! See the complete list in www.cmtausa.org

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Italian squash cream with yogurt

Spring has arrived. Nature will start blooming and giving its first fruits. To open the mild season, rich of colors and perfumes, we would like to suggest you a light recipe easy to prepare. A cream composed by Italian squash, a vegetable very recommended in these cases because it doesn’t

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Being mother of a special baby

Sometimes, it happens. Sometimes, it turns out that your desired, beloved, very sweet and beautiful baby doesn’t grow well. You start noticing problems that scare you. So run to hospitals, thousands of hospitals, until you reach your terrified verdict: your son is suffering from a rare disease, so rare, unknown,

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My wishes for you

Tips from our special friend Linda Crabtree… CMT and Me To all those with Charcot-Marie-Tooth disease I wish you: Patience to put up with what this crazy disease throws at us Perseverance to keep going when the going gets really tough Curiosity to keep looking for new ways to manage

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