Category: Medical-scientific Conferences

charcot-marie-tooth 2A

Neuromuscular Diseases’ Day: GMN 2024

The Seventh Day of Neuromuscular Diseases – GMN 2024- will be held on April 13, 2024. The event will take place simultaneously in 19 Italian cities linked to the most important centers for the study of neuromuscular diseases: Ancona, Bari, Bologna, Brescia, Cagliari, Chieti, Genoa, Messina, Milan, Naples, Palermo, Parma,

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1st European Conference of CMT

The CMT (also known as HMSN) was first described 140 years ago by French professor Jean-Martin Charcot, along with his student Pierre Marie de l’Hôpital de la Salpêtrière in Paris and Howard Henry Tooth. Charcot Marie Tooth is a rare disease, but not much. It affects 1 person per 2500

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charcot-marie-tooth 2A

General Meeting 2022 of the European CMT Federation

The General Meeting 2022 of the European CMT Federation was held on 18 June, partly in Berlin and partly online via Zoom. Our delegate Luisa Perrero virtually attended the meeting on behalf of our association: “Even though we weren’t all on site, it was still a nice way to meet. Participation was

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Charcot Marie Tooth neuropatia

Attending the Neuromuscular Diseases’ Day in Turin

We attended the GMN 2022 in Turin coordinated by Prof. Tiziana Mongini (Simple Structure for Neuromuscular Diseases – Department of Neuroscience, University of Turin) and Prof. Dario Cocito (Maugeri Clinical Scientific Institutes – Turin), with the participation of Dr. Franco Ripa, head of Health and Social Health Services Planning of Piemonte Region. “Attending this

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AFM-Téléthon

Mitochondrial CMT and AFM Téléthon meeting in Paris

Our dear Sonia Lauth, member of the partner association CMT France, reported the important meeting organised by AFM Téléthon which will be held in Paris on 26 Septembre 2018. The subject of the meeting will be mitochondrial CMT and in particular many of the CMT2A aspects will be discussing by some of

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charcot-Marie-Tooth disease

European CMT Federation: official presentation

The European CMT Federation (ECMTF) has been officially introduced during the 8th ASNP MEETING held in Rome last April, 2018. The objectives and the structure of the newborn federation our association is one of the founding members of have been introduced by President Daniel Tanesse (CMT France), together with vice

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Charcot Marie Tooth neuropatia

“evoCas9”: GENE THERAPY MADE IN TRENTO AND PERSPECTIVES FOR CMT

We would like to thank Paola Gargiulo for inviting us to the important Conference which is going to be held in Trento on March, 17th  2018. The topics they will be going over at the Conference are of a great importance for the advancement of research (for more information read

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congresso CMT France
charcot-marie-tooth 2A

“CMT: between hope and reality”

CMT: between hope and reality is the title of the Congress organized by CMT France  last March, 25 in Poitiers.  “This year we can finally talk about hope” said Daniel Tanesse, Vice President and Head of the Congresses the association regularly organizes every year to gather its members and talking about important issues concerning Charcot-Marie-Tooth

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#cmid

Forum of rare diseases of Piemonte and Valle D’Aosta

A-RARE, the forum of rare diseases’ associations of Piemonte and Valle D’Aosta has been officially introduced during the Conference organized by the CMID at the San Giovanni Bosco Hospital in Turin on the occasion of Rare Diseases Day (February 28, 2017). An interesting project made to create a network among the different associations of patients (and their families)

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charcot-Marie-Tooth disease

The role of nutritional integration in muscle activity (Congress)

We have just published on our website the interesting contribution from Dr Grazia D’Angelo to the Conference THE ROLE OF NUTRITIONAL INTEGRATION IN MUSCLE ACTIVITY held in Milan University last October: NUTRITION AND NURTURING THE DYSTROPHIC PATIENT (click here) Dr D’Angelo is responsible for the Muscle Disorders Operating Unit at Medea Institute of Bosisio

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