First European CMT Federation General Assembly

ECMTF

The first ECMT Federation general Assembly has been held last June, the 22nd in Genoa. Our Luisa Perrero Porzio took part of it on behalf of the Mitofusin 2 Project association.

“It was nice meeting founder friends and, at the the same time, welcoming the newcomers like AICMT, CMT Austria and CMT Romania associations.

The first report card after the first year has been very positive. We carried out many projects making us known to European institutions, patients and doctors, while three associations have joined us as new members so far. 

The assembly was impeccably well organized and, at the end of the day, we had a delicious outdoors dinner together. Thanks to our President, Vice President and all the Council.

During the meeting, we decided about next CMT Awarness Campaign 2019 which will be held in Italy, France and England next October.

The assembly took place in conjunction with the Annual meeting of the PNS (Peripheral Nerve Society) to which we participated as a group. 

Although no mention was made to CMT2A, but only to Charcot-Marie-Tooth in general, it was a good way to greet the major neurologists and specialists of peripheral nerve diseases from all over the world.

Furthermore, we had the interesting opportunity to meet American and Australian associations with whom, during a meeting, we hypothesized an effective collaboration.

On this occasion, we had the pleasure of meeting Susan Ruediger, President of a new American association in Atlanta: the CMT Research Foundation as well”.

Have a look on the Facebook page of ECMT Federation, you can find the pictures of the event!

https://www.facebook.com/EuropeanCMTfederation/

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