I am in China, my son and I also have CMT2A. Dear friend this is my story…


This is the story of Betty, a chinese disabled mother that was able to turn her suffering for her rare disease and for her son’s into something precious for a lot of people: the first institution of public utility for Charcot-Marie-Tooth in China (CMT China).

It has been translated by an article published on the Shenzhen Evening News (click here for the original link) that Betty has sent us last week by email:

“Dear friends this is my story…” click on the image to read the full text.

The story of Betty CMT China

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