A study conducted by Prof. Michael Shy and other scientists from Usa and Australia on a sample of 110 patients with CMT showed that many of them suffered with a weekly frequence and 23% of them had daily muscle cramps. Twenty-two percent reported a significant impact on quality of life.
It would be interesting to know what happens to patients with CMT2A2, CMT5 , CMT6 e ARCMT2 due to Mitofusin 2 mutation.
Could you tell us if you suffer from muscle cramps? And, if so, how often? Have you found some kind of remedy?
Please, tell us! Sharing information is very important for people with a rare disease like ours!