Tag: associazione no profit

KOFAX CONNECTIONS 2015 IDOL CMT2A

That is an original way invented by Meucci’s family to raise awareness about Charcot-Marie-Tooth 2A among an audience consisted by 400 employees of the multinational Kofax (Lexmark Group) . Marco Meucci, father of Leonardo (an 8-year-old boy suffering from CMT2A ), helped by his friend and supported by his wife and their other two

Read More »

“Il pranzo del Sorriso”, Mitofusin 2 Project event

We would like to inform you that we are going to organize the event “Il pranzo del Sorriso” (the Smile Lunch) that will be held (as usual) in Rignano sull’Arno (FI) on Sunday, 6 September 2015. A  time of joy and happiness we used to share with the people of this beautiful village located in the hills of Florence; an important occasion to

Read More »

The 197th Laboratory ENMC about Mitofusin 2

A very interesting news has been brought to our own attention by CMT France Association. It concerns the 197th Laboratory ENMC entitled “Neuromuscular disorders of mitochondrial fusion and fission – Molecular mechanisms and therapeutic strategies” which took place in April 2013 in Naarden, Netherlands (the report of which has been recently published). The European Neuromuscular Centre (ENMC) is an international organisation aimed at

Read More »
Join our mailing list. Always stay up to date.