Tag: associazione parenti

associazione parenti

Workshop on GENE THERAPY

We were delighted to announce the workshop: GENE THERAPY FOR INHERITED NEUROMUSCULAR DISORDERSFebruary 8th, 2016Aula Invernizzi, National Institute of Molecular Genetics (INMG)Fondazione IRCCS Ca’ Granda Ospedale Maggiore PoliclinicoVia Sforza 35, Milan, Italy with the distinguished Professor Brian Kaspar from Nationwide Children’s Hospital of Colombus, Ohio. The workshop will be carried out under the responsibility

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“Il pranzo del Sorriso”, Mitofusin 2 Project event

We would like to inform you that we are going to organize the event “Il pranzo del Sorriso” (the Smile Lunch) that will be held (as usual) in Rignano sull’Arno (FI) on Sunday, 6 September 2015. A  time of joy and happiness we used to share with the people of this beautiful village located in the hills of Florence; an important occasion to

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Papaya, the sweet fruit who fights illnesses

In these warm days, we would like to suggest you eating something as good as healthy which comes from beautiful Tropical lands: papaya. It is not only a delicious fruit to taste, but it is very healthy too, because it has got strong and beneficial properties. Some researchers believe papaya is

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Being mother of a special baby

Sometimes, it happens. Sometimes, it turns out that your desired, beloved, very sweet and beautiful baby doesn’t grow well. You start noticing problems that scare you. So run to hospitals, thousands of hospitals, until you reach your terrified verdict: your son is suffering from a rare disease, so rare, unknown,

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