Tag: Eurordis

Charcot-Marie-Tooth neuropathy type 2A

EURORDIS open letter to politicians: Recommendations to protect people suffering from a rare disease during the COVID-19 pandemic

EURORDIS, the voice of rare patients in Europe, has written an open letter to politicians containing some recommendations to follow in order to protect those suffering from a rare disease (over 300 million people worldwide) during the COVID-19 pandemic . “To leave no one behind in this pandemic”, especially those who are among

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