Tag: eventi raccolta fondi

KOFAX CONNECTIONS 2015 IDOL CMT2A

That is an original way invented by Meucci’s family to raise awareness about Charcot-Marie-Tooth 2A among an audience consisted by 400 employees of the multinational Kofax (Lexmark Group) . Marco Meucci, father of Leonardo (an 8-year-old boy suffering from CMT2A ), helped by his friend and supported by his wife and their other two

Read More »

Muscle cramps and CMT

A study conducted by Prof. Michael Shy and other scientists from Usa and Australia on a sample of 110 patients with CMT  showed that many of them suffered  with a weekly frequence and 23% of them had daily muscle cramps. Twenty-two percent reported a significant impact on quality of life. It would be interesting to know what

Read More »
Join our mailing list. Always stay up to date.